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Our daughter who was born on 07. 01. 2002 as a normal baby was admitted to hospital for a minor treatment on medical advice after three months of her birth.
While was being treated with an antibiotic at the hospital her level of haemoglobin (Hb) came down up to 2.5Gm/Dl (The standerd Lavel should be for infants 10-15.5Gm/Dl) within 3 days.
Then she was treated in order to regain the standard Hb level and maintain it. ultimately the disease was diagnosed as PURE RED CELL APLSIA at Lady ridgeway hospital for children –Borella in Sri Lanka.
According to their medical advice the only solution for this was to get her blood transfused monthly. Afterwards in the hope of receiving a satisfactary solution; we consulted a few consultant Hematologists in government hospitals Among them consultant Hematologist Dr. Dammika M. Disanaake [MBBS; Dip. Path. M.D. (Haematology)Ph, D,] paid a greater attention to this case. Under the guidance of Dr. Dammika M. Disanaake ; we tended to seek the medical advice of Prof.Dr. Alok Srivatsava, (MD; FRACP; FRCPA; FRCP; (Professor and head Departmant of haematology) of Christian Medical College (CMC) in Vellore ;Thmilnadu; South India.
By then we had only two children and the younger was our little son .According to the prof. Dr. Alok Srivatsava, the best solution for our daughter’s ailment was Bone marrow Transplantation (BMT) which should have been done in India .
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Our daughter who was born on 07. 01. 2002 as a normal baby was admitted to hospital for a minor treatment on medical advice after three months of her birth.
While was being treated with an antibiotic at the hospital her level of haemoglobin (Hb) came down up to 2.5Gm/Dl (The standard Lavel should be for infants 10-15.5Gm/Dl) within 3 days.
Then she was treated in order to regain the standard Hb level and maintain it. Ultimately the disease was diagnosed as PURE RED CELL APLSIA at Lady ridgeway hospital for children –Borella in Sri Lanka.
According to their medical advice the only solution for this was to get her blood transfused monthly. Afterwards in the hope of receiving a satisfactory solution; we consulted a few consultant Hematologists in government hospitals Among them consultant Hematologist Dr. Dammika M. Dissanayake [MBBS; Dip. Path. M.D. (Hematology)Ph, D,] paid a greater attention to this case. Under the guidance of Dr. Dammika M. Dissanayake ; we tended to seek the medical advice of Prof.Dr. Alok Srivastava, (MD; FRACP; FRCPA; FRCP; (Professor and Head Department of Hematology) of Christian Medical College (CMC) in Vellore ;Tamilnadu; South India.
At that time we had only two children and the younger was our little son .According to the prof. Dr. Alok Srivatsava, the best solution for our daughter’s ailment was Bone marrow Transplantation (BMT) which should have been done in India. Unfortunately that effort also came to nothing because of unmatching Bone marrow of our younger son. Then they decided to increase the growth of Red Blood cells using number of medicines .Unluckily it was also ended with smoke.
After that amidst a lot of hardships we decided to have another baby as there was possibility to do a Cord Blood Transplantation (CBT) more successfully. So my beloved wife gave birth to a baby girl amidst obstacles and impediments at the Christian Medical college in india
Unfortunately her Cord blood too was not matching enough to do the Cord Blood transplantation successful. Then under the guidance of Prof Dr. Alok Srivastava; we managed to find out a Matched Unrelated Donor (MUD) with the help of National Marrow Donor Program (N.M.D.P.) institute of America for a successful Bone Marrow Transplantation
This surgery has been planned to be done by a team of doctors including Prof Dr. Alok Srivastava, (MD; FRACP; FRCPA; FRCP; (Professor and head Departmant of haematology) at Christian Medical College in Vellore India in March 2012. The estimated cost for this surgery is US $ 80,000. i.e. around Rs. 8,900,000.00 (Sri Lanka Rupees)
As we have no such a big money we are seeking your kind financial and nonfinancial support (i.e. Suggestions, Opinions, Advertising and guidance)
Present Situation
By now she has sat for grade 05 scholarship exam and got through. Also she is not only good at her school subjects but also extra curricular activities. She has obtained Island wide awards for painting In addition she has good computing skills And She is a helpful modest and generous little girl.
She is living on blood transfusion when the Hemoglobin level goes down in her body. In addition she has no any other mental or Physical Disorders
Our Objective
Matched Unrelated Donor (MUD) Surgery has been planned to be done by a team of doctors including Dr. Alok Srivastava, (MD;FRACP;FRCPA;FRCP; (Professor and head Department of hematology) at Christian medical college at Vellore India in the month of March 2012.
The resources needed for this surgery are to be granted by the institute of National Marrow Donor Program ( NMDP) in USA. Prior to this surgery US $ 49305.00 has to be sent to the above institute.
The Hospital charge for the s Matched Unrelated Donor (MUD) surgery US $ 31000.00. So the total cost of this surgery will be US $ 80,000.00 although we don’t have this amount of money with us. We have to do this some how or the other so we are planning to mortgage our house the only immovable property. We have planning to take the bank loan that is given for the government servants. But the money we can obtain from these two ways itself is not enough at all to make this a success. That’s why we are completed to request your kind donation.
Contact Us
If you are willing to do something in advertising or guidance please be good enough to send them us using following ways.
| ranganap@bellmail.lk | ranganaplan@yahoo.com | |
| Skype | rangana818 | |
| Tele | +94 777 361278 | +94 718576969 +94 47 5670633 |
| Fax | +94 47 5670633 | |
Treatments Done
Our daughter who was born on 07. 01. 2002 as a normal baby was admitted to hospital for a minor treatment on medical advice after three months of her birth.
While was being treated with an antibiotic at the hospital her level of haemoglobin (Hb) came down up to 2.5Gm/Dl (The standard level should be for infants 10-15.5Gm/Dl) within 3 days.
Then she was treated in order to regain the standard Hb level and maintain it. ultimately the disease was diagnosed as PURE RED CELL APLSIA at Lady ridgeway hospital for children –Borella in Sri Lanka.
This type of patients can be treated in abroad. So we happened to go to India with our daughter for Bone Marrow Transplantation surgery in the year 2006.
Family Details
| Father’s Name | Mr. H.P. Gnanathilaka |
| Profession | Public Health Inspector |
| Mother’s Name | Mrs. H.S.P.S.Ranjani |
| Profession | Teaching |
| Country | Sri Lanka |
| Province | Sabaragamuwa |
| District | Rathnapura |
| Divisional Secretariat Division | Embilipitiya |
| Grama Niladhari Division | Nindagama Palessa |
| House No: | 315 B |
| House Name: | Rangana Niwasa |
| Number of Children | 03 |
| Patient’s Name | H.P.Ruwani Rangana (Eldest Daughter) |
| The Patient’s Age | 09 Years |
Accounts Details
We kindly request you to credit your financial donations in favor of H. P. Ruwani Rangana Hospital No: 880030 C and Account No: 10404158249 at State bank of India.
| Hospital Name | Christian Medical College & Hospital |
| Account Name | Christian Medical College Vellore Association |
| Name of the Bank | State Bank of India |
| Branch | Vellore Town Branch, code(1618) |
| City & Country | Vellore -632004 Tamil Nadu India |
| Account Number | 10404158249 |
| Account Type | Current Account |
| 9 Digit MICR Code | 632002006 |
| Swift Number | SBININBB473 |
| IFS / RTGS / IBAN Code | SBIN0001618 |
| Patient Name | H. P. Ruwani Rangana |
| Patient‘s Hospital Number | 880030 C |
| Bank Address | IDA Scudder Road, Vellore - 632 004, Tamil Nadu, India |
| Bank Telephone No | +91 416 2220770 , +914162221538 |
| Bank Fax No | +91 416 2222188 |
| Bank E-Mail | sbi.01618@sbi.co.in |
Intermediary Bank in the United States
| Name | State Bank of India, 460 Park Avenue, New York, NY 10022 |
| ABA Routing No | 0260 - 0914 - 0 |
| Chips UID | 034282 |
| Swift Code | SBINUS33 |
If it is inconvenient to you please be kind enough to credit it in favor of the ACC No: 0450 – 02017421 - 101. of Seylan Bank in Embilipitiya.
| Account No | 0450 – 02017421 - 101 |
| Account Name | H. P. RUWANI RANGANA |
| Name of the Bank | Seylan Bank |
| City & Country | Embilipitiya ; Sri Lanka |
| Branch | Embilipitiya Swift code :- seyblklx |